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Index www.parinti.com > Copiii >Copii cu nevoi speciale > neuropatie ereditara cronica senzitivo-motorie
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neuropatie ereditara cronica senzitivo-motorie

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Locatie: galati

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robert

05.07.2006 5:19 neuropatie ereditara cronica senzitivo-motorie


sant o mamica disperata ,baietelul meu in varsta de 3 anisori a 1an si 2 luni la spitalul Al Obregia,in timpul analizelor sa constatat ca nu aude ,doamna doctor la care eram ne-a i sa mai pus un diagnostic hipoacuzie neurosenzoriala bilaterala severa profunda.Timp de 1 an de zile am tot facut analize si o biopsie musculara pentru a neuropatie ,facem gimnastica de la 9 luni, am fost si la baile 1Mai.Dupa stabilirea completa a euro,pentru noi este foarte mult dar sant sigura ca o sa gasim noi o solutie pentru ai face operatia.Cel mai mult ma doare cand iesim la plimbare cu carutu ,atunci cand vede alti copii ca se joaca vrea si el se uita cu ochisorii foarte tristi la eii.Va rog foarte mult daca stiti ceva in legatura cu aceasta boala sa-mi spuneti si mie, daca mai sunt copii cu acest diagnostic ,vreu sa stiu si eu cum evolueaza aceasta boala . Multumesc foarte mult
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vyronis

02.05.2021 10:05


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vyronis

02.08.2021 5:47


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vyronis

02.12.2021 8:04


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vyronis

30.03.2022 10:13


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vyronis

28.08.2022 8:21


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vyronis

27.11.2022 4:26


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vyronis

22.02.2023 4:55


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vyronis

26.03.2023 2:32


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